Pediatric Spine Foundation

 

With over 200 members at 88 institutions in 11 countries, the Pediatric Spine Study Group (PSSG) encourages collaboration to study real world data in a heterogeneous patient population.

Pediatric Spine Registry

Members of PSSG and their research coordinators help to enroll patients into our Pediatric Spine Registry. This includes any patient with a spine and/or chest wall disorder that allows us to follow them throughout their care. This includes:

  • Early Onset Scoliosis
  • Immature Complex Scoliosis
  • Cervical Spine Disorders
  • Spondy/Lower back pain
  • Tweeners/Tethers

We also measure classification of EOS (C-EOS) and quality of life (EOSQ-24/SELF).

Research Council

The goal of our research council is to establish, facilitate, and support the project approval process for all new study proposals submitted by Study Group members.

Lead: Matt Oetgen

Team: Rob Murphy, Noelle Larson, Ying Li, Ben Roye, Jaime Gomez, Chris Hardesty, Josh Murphy, Josh Pahys, Pat Cahill, Michelle Welborn, Steve Hwang, Klane White, Lorena Floccari

Research Interest Groups

In order to encourage collaboration and allow many participants to be involved in PSSG, we have created 15 research interest groups that focus on filling the gaps in the current scoliosis research. These include:

  • Quality, safety, and value
  • Functional Outcomes
  • Growth Imaging
  • Non-operative care
  • Changing EOS practice
  • Spondy/Lower Back Pain
  • Neurogenic
  • Growth Modulation
  • Neuromuscular
  • C-spine
  • Congenital, syndromic
  • Complications
  • Graduates
  • Etiology
  • Enabling Technology